Being self-sufficient is a good thing.
As a parent, being able to take care of the needs of your kids is also a good thing.
Sometimes in life we get thrown curveballs that come in all shapes and sizes and when they hit, it can really shake the way we are able to be the self-sufficient, capable parents we had been up to that point.
If you have a child that has been diagnosed with a chronic illness or a medically complex condition - a gene mutation, diabetes, severe asthma, rare neurological disorders, physical deformities, the list goes on - that curveball can feel like it’s the size of a wrecking ball.
Overwhelm, grief, anger, sadness, confusion - all of these emotions can come along with these diagnoses and the ability to move forward can seem crippling.
We know that asking for help can be hard, but not knowing where to ask can make it even more difficult. At the Olivia Caldwell Foundation, these curveballs are well-known and so we are taking steps to help you or someone you know be able to move forward.
Our Patient Advocacy Program is a free resource to help families with children diagnosed with a chronic illness or medically complex condition. In partnership with the Orr’s Hope Foundation and the McMurry Foundation, our Patient Advocate is here to help connect these families - your family - to the local resources they need to find whole-family health during this medical journey. We can help connect you to amazing organizations already in place within your local community without you getting lost in google searches. If you need school support, counseling, bill assistance (medical and non-medical), travel assistance to out of state medical appointments, food, housing, medical professional referrals, childcare, therapy or adaptive equipment - you name it, we’re set on listening to your needs and helping to connect you to the resources that may be the best fit!
My name is Katelin, our Patient Advocate, and I would love to assist you as you continue to be the caring supportive parent that you are for your family in a hard time. Please reach out to me at (307)333-1273 or firstname.lastname@example.org and take those next steps in for your family!